Epilepsy definitely is a community, but our seizures don’t give us a united warning system when one of us is in trouble, and our blogs sure can’t be used as emergency contacts.
If you or your friend is neck-deep in the quicksand, you’re going to want someone licensed and trained in things, not Lady-Sneeze-n-Seize.tumblr.com (this url available)
Anonymous said: pls help me my friend is contemplating suicide and have no experience with this. her url is recovery-and-idontknow. and yes she also has epilepsy. pls help, i'm extremely worried.
Please, next time do not be on anon to give these messages. I wouldn’t go to a stranger’s house and ring the doorbell all “hey someone i never met, my friend is hurting, can you go over to her house even though she doesn’t know you and you won’t know my name to smooth things over.”
That said, if it isn’t your friend and it’s really you who is suffering, come off anon and we can talk about it privately. Here is a global list of suicide helplines to bookmark while I go stick my nose into some stranger’s business….
Please learn how to properly respond to seizures
It has come to my attention that most people generally do NOT know how to respond to someone having a seizure.
One, call 911. Don’t assume someone else already has.
Do NOT put anything in their mouths. You might think you’re helping but you are in fact restricting their airways and can cause them to either choke on the item or choke on their own saliva.
Do NOT hold them down. The only reason you should even be TRYING to restrain them is to move their hands away from their face if they start moving towards it. This is only to prevent any sort of scratching or biting that could occur. It’s rare that you would ever have to do so. Otherwise, DO NOT HOLD THEM DOWN. Just let he seizure run it’s course, monitor them, and wait for professional help. Most seizures only last a few minutes but they will often be dazed or in a state of complete panic and shock when they come to. So stay with them even AFTER the violent part of the seizure stops.
Move anything that could hurt them away, and if possible you can try to ease them to the floor and put a something soft under them. Do not put them flat on their backs because they WILL choke on their saliva or vomit or blood if they managed to bite their tongue. Try putting something soft under their head, a jacket, anything to prevent further injury from their their head hitting the ground repeatedly.
Most of you are in college now, anything can happen in a classroom. You may not always have trained EMTs in your class like I did today.
Please, just take a minute and read this. There’s even great illustrations if you’re still confused.
I’m going to throw in my two cents, don’t call the ambulance immediately. Time the seizure, and after about one whole minute of seizure activity, then call the feds.
If you know the person, know the seizures are frequent and not life-threatening, smack the phones out of anyone who is trying to dial 911.
If the person wakes up by the time the ambulance arrives, everyone within sight has to pony up to help with the unnecessary bills. This is a real law, btw.
hey if you guys every need a ride use lyft. Theres a 25$ free first ride code here http://get.lyft.com/download/?code=lyfttampa or download the app from the app store and use the code lyfttampa it works any where.
I thought I was having nocturnal seizures, but it turned out I was grinding my teeth and chowing down on my cheeks.
TOPIRAMATE/TOPAMAX ROLL CALL
Pleeeeease can anyone who is or has taken topiramate drop me a message or reply to this and let me know? I really have so many questions about symptoms I currently have and whether they are related to the meds or not. Thank you in advance :)
I take it. http://www.crazymeds.us/pmwiki/pmwiki.php/Meds/Topamax is a good place to start for now.
oh fuck my butt, what if i catch SUDEP and they start saying that “her smile lit up a room” bullshit
"A team of researchers from SUNY Downstate Medical Center (SUNY Downstate) and Sanford-Burnham Medical Research Institute (Sanford-Burnham) has found that deficiencies in hyaluronan, also known as hyaluronic acid or HA, can lead to spontaneous epileptic seizures. HA is a polysaccharide molecule widely distributed throughout connective, epithelial, and neural tissues, including the brain’s extracellular space (ECS). Their findings, published on April 30 in The Journal of Neuroscience, equip scientists with key information that may lead to new therapeutic approaches to epilepsy…”
Sigh… lack of Vitamin C. “hyaluronan, also known as hyaluronic acid or HA” is basically vitamin c. Onions, tomatoes, citrus fruits, whatever. Scurvy causes seizures. Great job, science.
“new therapeutic approaches to epilepsy” aka a flintstone vitamin
I spent the majority of “James and the Giant Peach” screaming at the centipede how to navigate by the sun alone btw
I woke up at the sunrise and thought it was the sunset and I had a seizure that put me to sleep all day.
I have very vivid dreams after years of patience, but it’s also a way for me to gauge what kind of stresses I’m working with in my life. Above all, lucid dreaming allows me to change the dream’s narrative by interacting with the elements around me (usually this means trying to fly away- so far I can hover about five feet off the ground :/)
This morning’s dream sent me back to middle school, where the cretins in the bus seat behind me stole my bag….
Anonymous said: i keep having dreams that i'm having a grand mal seizure (mine typically progress from simple-partial to grand mal). i've had nocturnal seizures that woke me up before, but is it possible to have a nocturnal seizure and remain asleep? the dreams are so vivid. like for example i had one of these dreams last night, and this morning i woke up with a splitting headache. does anyone have experience with this?
This is completely out of my league, and I apologize for not being able to give you any sort of reliable answer. Followers, any suggestions or similar experiences would be so appreciated by myself and the writer.
The only thing I have to offer is getting into lucid dreaming. It may help you to differentiate between dreaming and sleep seizures. You’ll find more about that hocus-pocus pseudoscience on google. I’m sorry I can’t offer more.