Because ambulance rides are expensive


Photoset

Sep 1, 2014
@ 1:08 pm
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8,110 notes

beefyboullion:

Racist Epilepsy First Aid:

  1. put rocks in their mouth
  2. film it

Prevention tips for future seizures:

  1. don’t say the n word

(Source: tsunamiwavesurfing)


Text

Aug 31, 2014
@ 1:54 pm
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7 notes

Epilepsy definitely is a community, but our seizures don’t give us a united warning system when one of us is in trouble, and our blogs sure can’t be used as emergency contacts.

If you or your friend is neck-deep in the quicksand, you’re going to want someone licensed and trained in things, not Lady-Sneeze-n-Seize.tumblr.com (this url available)


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Aug 31, 2014
@ 1:34 pm
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Anonymous said: pls help me my friend is contemplating suicide and have no experience with this. her url is recovery-and-idontknow. and yes she also has epilepsy. pls help, i'm extremely worried.

Please, next time do not be on anon to give these messages. I wouldn’t go to a stranger’s house and ring the doorbell all “hey someone i never met, my friend is hurting, can you go over to her house even though she doesn’t know you and you won’t know my name to smooth things over.” 

That said, if it isn’t your friend and it’s really you who is suffering, come off anon and we can talk about it privately. Here is a global list of suicide helplines to bookmark while I go stick my nose into some stranger’s business….


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Aug 29, 2014
@ 1:01 pm
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15 notes

Please learn how to properly respond to seizures

the-earth-is-waiting:

It has come to my attention that most people generally do NOT know how to respond to someone having a seizure.

One, call 911. Don’t assume someone else already has.

Do NOT put anything in their mouths. You might think you’re helping but you are in fact restricting their airways and can cause them to either choke on the item or choke on their own saliva.

Do NOT hold them down. The only reason you should even be TRYING to restrain them is to move their hands away from their face if they start moving towards it. This is only to prevent any sort of scratching or biting that could occur. It’s rare that you would ever have to do so. Otherwise, DO NOT HOLD THEM DOWN. Just let he seizure run it’s course, monitor them, and wait for professional help. Most seizures only last a few minutes but they will often be dazed or in a state of complete panic and shock when they come to. So stay with them even AFTER the violent part of the seizure stops.

Move anything that could hurt them away, and if possible you can try to ease them to the floor and put a something soft under them. Do not put them flat on their backs because they WILL choke on their saliva or vomit or blood if they managed to bite their tongue. Try putting something soft under their head, a jacket, anything to prevent further injury from their their head hitting the ground repeatedly.

Most of you are in college now, anything can happen in a classroom. You may not always have trained EMTs in your class like I did today.

Please, just take a minute and read this. There’s even great illustrations if you’re still confused.


http://www.wikihow.com/Help-Someone-Who-Is-Having-a-Seizure

I’m going to throw in my two cents, don’t call the ambulance immediately. Time the seizure, and after about one whole minute of seizure activity, then call the feds.

If you know the person, know the seizures are frequent and not life-threatening, smack the phones out of anyone who is trying to dial 911.

If the person wakes up by the time the ambulance arrives, everyone within sight has to pony up to help with the unnecessary bills. This is a real law, btw.


Text

Aug 29, 2014
@ 12:50 pm
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3 notes

littlelitte:

hey if you guys every need a ride use lyft. Theres a 25$ free first ride code here http://get.lyft.com/download/?code=lyfttampa or download the app from the app store and use the code lyfttampa it works any where.


Text

Aug 27, 2014
@ 2:01 pm
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I thought I was having nocturnal seizures, but it turned out I was grinding my teeth and chowing down on my cheeks.


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Aug 27, 2014
@ 11:32 am
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2 notes

TOPIRAMATE/TOPAMAX ROLL CALL

fuckepilepsy:

i-am-thawing:

Pleeeeease can anyone who is or has taken topiramate drop me a message or reply to this and let me know? I really have so many questions about symptoms I currently have and whether they are related to the meds or not. Thank you in advance :)

(?)

signal boost

I take it. http://www.crazymeds.us/pmwiki/pmwiki.php/Meds/Topamax is a good place to start for now.


Text

Aug 27, 2014
@ 11:31 am
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2 notes

oh fuck my butt, what if i catch SUDEP and they start saying that “her smile lit up a room” bullshit


Link

Aug 24, 2014
@ 4:57 pm
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13 notes

Researchers reveal new cause of epilepsy »

Sigh… lack of Vitamin C. “hyaluronan, also known as hyaluronic acid or HA” is basically vitamin c. Onions, tomatoes, citrus fruits, whatever. Scurvy causes seizures. Great job, science.

new therapeutic approaches to epilepsy” aka a flintstone vitamin


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Aug 24, 2014
@ 1:37 pm
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4 notes

I spent the majority of “James and the Giant Peach” screaming at the centipede how to navigate by the sun alone btw


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Aug 24, 2014
@ 1:32 pm
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I woke up at the sunrise and thought it was the sunset and I had a seizure that put me to sleep all day.


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Aug 24, 2014
@ 1:30 pm
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1 note

Dream Journal

I have very vivid dreams after years of patience,  but it’s also a way for me to gauge what kind of stresses I’m working with in my life. Above all, lucid dreaming allows me to change the dream’s narrative by interacting with the elements around me (usually this means trying to fly away- so far I can hover about five feet off the ground :/)

This morning’s dream sent me back to middle school, where the cretins in the bus seat behind me stole my bag….

Read More


Photo

Aug 23, 2014
@ 7:40 pm
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1,217 notes

meetcarajean:

captainfantasticspastic:

Seizure First Aid: Read it. Learn it. Know it. Teach it.

This means a lot to me

meetcarajean:

captainfantasticspastic:

Seizure First Aid: Read it. Learn it. Know it. Teach it.

This means a lot to me

(via captainfantasticspastic)


Photo

Aug 22, 2014
@ 2:38 pm
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27 notes

creque:

@BrandonFobbs (“The Wire”, “Pride”) in “David’s Reverie" - A film about a jazz musician struggling to prevent his epilepsy diagnosis from derailing his emerging career.
Help us finish the movie and check out our kickstarter: http://kck.st/S3z6YA

creque:

@BrandonFobbs (“The Wire”, “Pride”) in “David’s Reverie" - A film about a jazz musician struggling to prevent his epilepsy diagnosis from derailing his emerging career.

Help us finish the movie and check out our kickstarter: http://kck.st/S3z6YA

(via hazypurplerain)


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Aug 21, 2014
@ 1:25 pm
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Anonymous said: i keep having dreams that i'm having a grand mal seizure (mine typically progress from simple-partial to grand mal). i've had nocturnal seizures that woke me up before, but is it possible to have a nocturnal seizure and remain asleep? the dreams are so vivid. like for example i had one of these dreams last night, and this morning i woke up with a splitting headache. does anyone have experience with this?

This is completely out of my league, and I apologize for not being able to give you any sort of reliable answer. Followers, any suggestions or similar experiences would be so appreciated by myself and the writer.

The only thing I have to offer is getting into lucid dreaming. It may help you to differentiate between dreaming and sleep seizures. You’ll find more about that hocus-pocus pseudoscience on google. I’m sorry I can’t offer more.