Because ambulance rides are expensive


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Jul 28, 2014
@ 9:53 am
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6 notes

Epilepsy Warning

peterorlovsky:

Hello friends!!! Last night I went to The Gospel Tour, and everyone sounded really great, but PLEASE if you’re epileptic, don’t go. Every single song in Panic! at the Disco’s set included flashing lights and colors, except one. I had to cover the stage with my hand and close my eyes basically the whole time. They sounded great and it was fun to listen to, but if you’re epileptic and plan on going, please think twice about it. Thank you.


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Jul 28, 2014
@ 9:53 am
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2 notes

The movie Lucy

mikamalinsky:

Was really good, has a lot of science in it, I really liked it. I dont have much to say because I really don’t want to spoil it. I recommend it but be careful it does have some flashing, and fast moving scenes.

This movie does not have a seizure warning. In the beginning.


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Jul 25, 2014
@ 1:00 pm
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2 notes

wolfwum said: I've been on Topamax for >10 years. It's actually used off-label as a weight loss pill and only rarely causes weight gain. Also used for migraines. However, it's kinda strong and often causes a lot of forgetfulness and unfocused-ness (as is epilepsy med norm). I'm actually switching to Lyrica in hopes of better focus. HOWEVER, Topamax WAS the go-to for me for so long, so don't take my switch as a total negative. Just personally trying something new and wanted to answer your question.

epilepsysupport:

For the Topamax anon!


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Jul 25, 2014
@ 12:59 pm
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thoughtswithin13 said: I take topamax it causes some weight loss and depending on the dosage makes you spaceout

Hee hee… thank you very much for the tips, but I’ve been on the topx for almost ten years now. I lost over 50 lbs, I’ve failed several courses at my local community college designed to allow me to take high school math classes, so I can take credit bearing courses, my hair’s falling out, I “drop” words and pause all the time when I try to talk out loud, and oh man oh man have I been tired

I’m like, the topiramate master at this point. I’m the tough by the books gritty cop and topamax is my wildcard street-wise partner and my brain the police chief who’s sick of our weekly foibles. Is he gonna be generic? Which company’s generic is it? Can I drink soda this time? Hey wait, I don’t even like soda! 


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Jul 25, 2014
@ 11:24 am
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Anonymous said: Just wondering what topamax is like as a mediation for seizures? Does it put on weight?

epilepsysupport:

ES used to take topamax, I don’t know if they gained weight but they did complain of a side effect that caused their feet to tingle… Google says it can cause weight loss… Followers?

I’ve always considered it the best of the worst, but this is a much more comprehensive resource: http://www.crazymeds.us/pmwiki/pmwiki.php/Meds/Topamax


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Jul 25, 2014
@ 11:21 am
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3 notes

zhinni:

i’m up all night to keep my sister safe… but now i’m scared to post about it. sorry. i honestly don’t think i’m a hero, i’m almost completely certain that it was my lack of action that caused her to bite her tongue and cheek. that’s on my head, and i know it. but i’d rather stay up and be ridiculed for it than go to my room and maybe not be here when she needs me. i did my best with a sleep addled brain and no one else in the house. every time she moves i jump and stare to make sure she isn’t seizing. i’m terrified. 

Post whatever you like, just don’t tag it as “epilepsy.” People with epilepsy use this tag to talk about their issues, which include the very real issue of bystanders or family members using the “epilepsy” tag to relay situations is where they have been “traumatized” by having to watch one of us have a seizure, or worse yet, call themselves a “hero” for doing us the favor of rolling us over.

We in the epilepsy community love that your sister is okay, and we love even more that she has someone willing to stay by her side. We do not love posts in the “epilepsy” tag about people without seizures outlining how scary seizures are. People who actually have the seizures are scared enough- they benefit greatly from not having to read bystander accounts such as the one you posted.

But now you know, and you won’t ever do it again, so everything’s peaches and cream from here on out. I hope your sister isn’t annoyed by you freaking out everytime she farts or blinks.


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Jul 23, 2014
@ 3:41 pm
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4 notes

liveoutloud4epilepsy:

Hey guys!! Join me in putting a smile😃💜 on Danny’s face for his 💥🎉5th Birthday on July 25th. Please take a few minutes out of your day to send him a card. A kind gesture goes a long way. #support #liveoutloud #strongertogether (at www.liveoutloud4epilepsy.org)

Postcards cost about 35 cents and letters 50 cents.

liveoutloud4epilepsy:

Hey guys!! Join me in putting a smile😃💜 on Danny’s face for his 💥🎉5th Birthday on July 25th. Please take a few minutes out of your day to send him a card. A kind gesture goes a long way. #support #liveoutloud #strongertogether (at www.liveoutloud4epilepsy.org)

Postcards cost about 35 cents and letters 50 cents.


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Jul 20, 2014
@ 11:42 pm
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1 note

"Finding the Treatment Options That Suck Less" »

despite the name, this site is a magnificent resource for navigating your medication’s side effects.


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Jul 20, 2014
@ 11:38 am
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9 notes

powderedtoooastman said: Howdy. I was wondering if anyone on here is on the medication Lamictal. More specifically, I am wondering if the weirdness I am experiencing is part of the med, or something else. While taking my 200mlg extended release twice a day dosage, I have the tendency to struggle for words at times. Like the word I want to use is there, but it's stuck behind a fog bank. Has anyone else had this issue? My neurologist never heard of "brain fog"

epilepsysupport:

I used to take Lamictal and I did experience some memory problems, but I have always had those and I never attributed it to the drug itself. Any followers?

-The sister

It’s normal, and the most you can do is keep your mind sharp- crossword puzzles, word jumbles, reading, etc. I myself have to keep a pen and pad around because my short-term memory’s gotten so poor.

I’m more concerned about your nuerologist not realizing an anticonvulsant might make you a little fuzzy in the brain. Consider printing out some FDA information about your drugs’ side effects for their perusal next time.


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Jul 15, 2014
@ 1:32 pm
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1 note

maggotstuck:

((Okay, to anyone who saw the post I tagged earlier with ‘epilepsy’ instead of ‘epilepsy warning,’ I am SO sorry! I’ve fixed the tag now, and I appologize for screwing it up in the first place– I don’t make gifs that often and I had no idea what I was doing. It won’t happen again, I promise!))

((Ffffff I am SO SORRY))


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Jul 14, 2014
@ 10:24 pm
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3 notes

fakingtranquility:

Yikes. Strobing gifs just gave me a seizure. *cries*
I’d been seizure-free for 2 months, then this week I’ve had 3.
I can’t blacklist the warning tags on mobile. I think I might have to stop using mobile, because even if things are tagged (this last one wasn’t), I can’t get away from them.


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Jul 13, 2014
@ 12:09 am
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I wasn’t sure what a diet cola would taste like on topamax, and I am happy to report my mouth went a little numb like the fluoride gel you get at the dentist


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Jul 12, 2014
@ 12:16 pm
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12 notes

hey gorgeous buddies with epilepsy

clahrissa:

just to let you know that this blog tags “epilepsy warning”
any other triggers you want tagged just let me know bc all you guys deserve to feel happy and safe online (◕‿◕✿)


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Jul 12, 2014
@ 12:11 pm
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5 notes

cougarmeat:

All you privileged buggers who can go to the cinema, or for a drive without having to worry about having a seizure.


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Jul 9, 2014
@ 8:38 pm
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Anonymous said: what do you mean you don't get shin splints? so jealous rn

when I walk, I make sure my heel hits the ground first. over the years this has gradually built up my tibialis anterior muscle, which is largely the source of shin splints. and stretch