I wrote another song today
Did I take My Meds© today
So hard to give a fuck in either case
Staring at the cabinet waiting for a sign
Wait five minutes give the ones you took some time
Fuck what the label said
Playing neuro games where normies fear to tread
Half life full consequences
Worse case scenario prolly end up dead
Did I take My Meds©
Stop asking the question maybe it’ll go away
I’m not irresponsible just fucked up
A million grams of electricity available for the suck up
Not feeling the high from the fuckin’ doctor drugs
About this time feeling like the machine that gives hugs
Hypothesis proved I skipped them this morning
I’m the matador anticonvulsants do the goring
Fuck what the label said
At least with cancer u alive or dead
Next time I’ll make a schedule
Let the meds rule
All hail Lamictal
Check me out the royal fool
Unfortunate, Well-Meaning Person: How are you?
Me: I have epilepsy
Unfortunate, Well-Meaning Person: Oh my gosh are you okay? I am panicking and do not know what to do
Me: It's okay, I've it for like, ever lol
Unfortunate, Well-Meaning Person: how do you know the bride and groom again
In the new 1.8 update, do NOT set your render distance above eight chunks. Any chunks that load beyond that point seem to scroll through random chunk generations every few pixels you move your mouse, and if you’re unaware, that’s something that could make someone without epilepsy’s eyes hurt in a…
epilepsy-pillpack started following you
are you like.. following people with epilepsy on tumblr and watching us and stuff?
Epilepsy definitely is a community, but our seizures don’t give us a united warning system when one of us is in trouble, and our blogs sure can’t be used as emergency contacts.
If you or your friend is neck-deep in the quicksand, you’re going to want someone licensed and trained in things, not Lady-Sneeze-n-Seize.tumblr.com (this url available)
Anonymous said: pls help me my friend is contemplating suicide and have no experience with this. her url is recovery-and-idontknow. and yes she also has epilepsy. pls help, i'm extremely worried.
Please, next time do not be on anon to give these messages. I wouldn’t go to a stranger’s house and ring the doorbell all “hey someone i never met, my friend is hurting, can you go over to her house even though she doesn’t know you and you won’t know my name to smooth things over.”
That said, if it isn’t your friend and it’s really you who is suffering, come off anon and we can talk about it privately. Here is a global list of suicide helplines to bookmark while I go stick my nose into some stranger’s business….
Please learn how to properly respond to seizures
It has come to my attention that most people generally do NOT know how to respond to someone having a seizure.
One, call 911. Don’t assume someone else already has.
Do NOT put anything in their mouths. You might think you’re helping but you are in fact restricting their airways and can cause them to either choke on the item or choke on their own saliva.
Do NOT hold them down. The only reason you should even be TRYING to restrain them is to move their hands away from their face if they start moving towards it. This is only to prevent any sort of scratching or biting that could occur. It’s rare that you would ever have to do so. Otherwise, DO NOT HOLD THEM DOWN. Just let he seizure run it’s course, monitor them, and wait for professional help. Most seizures only last a few minutes but they will often be dazed or in a state of complete panic and shock when they come to. So stay with them even AFTER the violent part of the seizure stops.
Move anything that could hurt them away, and if possible you can try to ease them to the floor and put a something soft under them. Do not put them flat on their backs because they WILL choke on their saliva or vomit or blood if they managed to bite their tongue. Try putting something soft under their head, a jacket, anything to prevent further injury from their their head hitting the ground repeatedly.
Most of you are in college now, anything can happen in a classroom. You may not always have trained EMTs in your class like I did today.
Please, just take a minute and read this. There’s even great illustrations if you’re still confused.
I’m going to throw in my two cents, don’t call the ambulance immediately. Time the seizure, and after about one whole minute of seizure activity, then call the feds.
If you know the person, know the seizures are frequent and not life-threatening, smack the phones out of anyone who is trying to dial 911.
If the person wakes up by the time the ambulance arrives, everyone within sight has to pony up to help with the unnecessary bills. This is a real law, btw.
hey if you guys every need a ride use lyft. Theres a 25$ free first ride code here http://get.lyft.com/download/?code=lyfttampa or download the app from the app store and use the code lyfttampa it works any where.
I thought I was having nocturnal seizures, but it turned out I was grinding my teeth and chowing down on my cheeks.
TOPIRAMATE/TOPAMAX ROLL CALL
Pleeeeease can anyone who is or has taken topiramate drop me a message or reply to this and let me know? I really have so many questions about symptoms I currently have and whether they are related to the meds or not. Thank you in advance :)
I take it. http://www.crazymeds.us/pmwiki/pmwiki.php/Meds/Topamax is a good place to start for now.
oh fuck my butt, what if i catch SUDEP and they start saying that “her smile lit up a room” bullshit
"A team of researchers from SUNY Downstate Medical Center (SUNY Downstate) and Sanford-Burnham Medical Research Institute (Sanford-Burnham) has found that deficiencies in hyaluronan, also known as hyaluronic acid or HA, can lead to spontaneous epileptic seizures. HA is a polysaccharide molecule widely distributed throughout connective, epithelial, and neural tissues, including the brain’s extracellular space (ECS). Their findings, published on April 30 in The Journal of Neuroscience, equip scientists with key information that may lead to new therapeutic approaches to epilepsy…”
Sigh… lack of Vitamin C. “hyaluronan, also known as hyaluronic acid or HA” is basically vitamin c. Onions, tomatoes, citrus fruits, whatever. Scurvy causes seizures. Great job, science.
“new therapeutic approaches to epilepsy” aka a flintstone vitamin
I spent the majority of “James and the Giant Peach” screaming at the centipede how to navigate by the sun alone btw
I woke up at the sunrise and thought it was the sunset and I had a seizure that put me to sleep all day.